Christmas is just around the corner… and since it’s the season of giving and sharing, we at PYCSGFC have decided to do our second charity project to support another non-profit organization. This time, we have decided to do a fundraising project under Park Yuchun’s name for Rare Disorder Society (Singapore) or RDSS.
Through this project, we hope to create awareness on rare disorders/diseases and help RDSS raise funds to support their “Power of Life” program. We hope that by doing so, we can give the children supported by RDSS a little bit of HOPE.
Hence, we came up with the project name, “HOPE for RARE”.
WHAT ARE RARE DISORDERS / DISEASES?
Rare diseases are long-standing, life threatening, progressively disabling conditions that affect a small percentage of population and require multidisciplinary care.
Some of the well-known rare diseases include Phenylketonuria, Thalassemia, Osteogenesis Imperfecta, Mucopolysaccharidoses, Spinal Muscular Atrophy and so on.
Here are some of the facts about rare disorders/diseases:
* 30% of children will die before reaching their fifth birthday unless early intervention is given
* Rare diseases are responsible for 35% of deaths in the first year of life
* The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families
*Approximately 50% of rare diseases do not have a disease specific foundation supporting or researching about their rare disease
You can read more on rare disorders here : http://www.rdss.org.sg/rarefacts/
RARE DISORDER SOCIETY (SINGAPORE) or RDSS
Rare Disorders Society (Singapore) is a non-profit organization established in 2011, which serves children living with rare disorders and aims to create awareness about various life threatening rare diseases.
Also, RDSS is not funded by the Community Chest and other charities in Singapore. They have been raising funds on its own to finance the various programs and activities for the benefit of its members.
You can read more about RDSS here: http://www.rdss.org.sg
HOW ARE WE GOING TO HELP THEM?
Through our “HOPE for RARE” fundraising project, we aim to support the “Power of Life” program of RDSS which reimburses up to SGD80.00 a month for any patient who uses medical equipments at home such as Ventilator, Oxygen concentrator, Suction machine, Oximeter, Nebuliser, and Cough Assistant.
With this program, RDSS needs SGD960.00 monthly to support 12 patients currently receiving subsidy from them. This means they need to raise SGD11,520.00 every year.
Thus, our goal for our “HOPE for RARE” project is to help them raise as much funds as we can to help them support those patients who use medical equipments at home
*Please note that 100% of the funds collected from this fundraising project will be donated under Park Yuchun’s name.
You can read more on their “Power of Life” program here: http://www.rdss.org.sg/cause-view/power-for-life/
HOW YOU CAN HELP
STEP 1: To help us raise funds for RDSS, you can donate any amount (in SGD only) to Paypal address firstname.lastname@example.org
For Chunsas in Singapore, HongKong, Malaysia and the Philippines who wish to support our project, you can also donate thru bank transfer (Philippines: BDO or BPI) in your local currency (SGD, RM, HKD and PHP). Kindly email us at email@example.com for the bank details.
*Note: For Chunsas in the Philippines who will donate thru bank transfer, please help us and add Php50 to your donation amount, which will cover Paypal fees when we transfer all your donations to Singapore. Thank you! 🙂
STEP 2: Kindly fill up our donation form to help us account for all the funds collected. (Please make sure to make the donation first before submitting this form) :
Please fill up our donation form here ==> DONATION FORM
*We will confirm your donation within 24 hours upon submitting our donation form*
“THANK YOU” GIFTS
As our way of saying “thank you” for supporting our project, the admins of PYCSGFC have decided to give some gifts for FREE to those who will donate SGD40.00 and above (or PHP 1,450 and above + Php50 Paypal fee) under our “HOPE for RARE” project.
Please note that since we only have limited number of these gifts, only one (1) set of gift will be given per person and will be on a “first come, first served” basis.
*Note: Although we have a minimum donation amount to receive the gifts, we also welcome any amount of donation. Just remember that no amount is small enough as long as it’s given wholeheartedly and from the heart… 🙂
SHIPPING / MAILING OF GIFTS
The “thank you” gifts will be sent to your mailing address (anywhere in the world) for FREE courtesy of our PYCSGFC admins by mid or end of November 2014.
They will be mailed to you from Singapore or the Philippines depending on your location.
Also, please note that you don’t have to pay for the shipping / mailing fees… just donate a minimum amount of SGD40 (or SGD40 + 3.9% + SGD0.50 for donations thru Paypal) or PHP1,450 + Php50 (Paypal fees) and we’ll handle the shipping / mailing fees for you. 🙂
Our “HOPE for RARE” project will run from November 4 to 30, 2014.
From time to time, we’ll provide everyone with an update as to how much we have collected so far. We’ll also provide an update report on our donation to RDSS after this project.
WE NEED YOUR HELP
Chunsas, we need your help and support. We all know that respiratory support is very critical to this group of children with rare diseases as some of them rely on these to live. Thus, your support for our “Hope for Rare” project will go a long way giving these children a chance to live.
Together, we can give them a little bit of HOPE. So please help us as we spread some HOPE to these children and let’s show the world that WE, Chunsas, also CARE for RARE.
Thank you! 🙂Cheers, ❤ PYCSGFC Admin Team ❤
P.S. Just in case you have further questions or we forgot some info about our project, feel free to comment below or e-mail us at firstname.lastname@example.org
*All information about Rare Disorders were taken from http://www.rdss.org.sg*